It's Saturday.
The last couple days have been rough and still are rough. I got my Walker, but I am able to walk today, with just a cane for now. Maybe I will need the walker next time, especially if I have as hard of a time with the side effects or harder. God forbid that happen. Â
I talked to some ladies in the Facebook group for Serous Carcinoma cancer ladies. They all said I need to see if I can get the chemo/meds reduced, or see if I can get more steroids. I am definately going to ask. I can't spend the next 4 chemo sessions (Three months) living like this. I guess this is God telling me to slow down, take my time, and take care of myself.
I have been getting a lot of Leg pain mainly, feels deep inside the bone. I can tell that it gets ever so slightly better each day, but I am still a Fall risk and lose my balance a lot. I kind of feel like I have the flu, but I know I don't.
Still not getting any of the other symptoms that others talk about. I mean thank you Jesus, I still have my taste buds, NO metallic taste "YET". I am losing my hair. That one, I decided that once I noticed it falling out, even the slightest, I was going to shave my head clean down to the skin. It would be less traumatic for me to see a bald head than to see a head with hair and bald spots.  Bald heads are acceptable in public, lots of women do it, and they aren't even sick. So this is what I tell myself.
Recap: So far, Chemo # 2 has been the WORST experience.. My Oncologist told me that I can talk about reducing the meds next time so that is exactly what I am going to do as long as it will not hinder or slow down the progress (of killing off the cancer cells).
I can't upload the video for some reason. It's ok, it would just make you cry. My husband Travis cried the whole time he shaved my hair off. I cried because he cried, but honestly, I was okay with losing the hair. My scalp was getting so darn sensitive and it hurt all the time. Anything touched my hair and my head would throb. Shaving it was the best decision I have made in this journey (next to fighting to survive that is).Â
I knew I was losing my hair because (as anyone going through chemo losing their hair will tell you) you run your hands through your hair and your hand comes out with 20-30 strands of hair wrapped around your fingers. If you know, you know.
After we shaved the first time though, we didn't get too close of a shave, we left about 1/4 inch of hair on my head. Sleeping that night was impossible. The short hair made the scalp pain worse, it felt like tiny needles puncturing my head every time I moved or tried to roll over. After I got woke the next morning, just sitting there drinking my coffee, I ran my hand over my head (as anyone who just got their head shaved would do) and It looked like my head was raining snow flakes. The hair started coming out in droves. This REALLY freaked me out.. I went in and charged my shaver "the kind that gets a close shave" and buzzed it all a way. I will be keeping it nearly skin bald until Chemo is done. This is much more comfortable.
And can I say, I am so thankful to god that he gave me a rounded, very nice looking head. I was terrified that it would be all bumpy and ugly looking.  Aside from badly needing a tan on my scalp (Which, being out in the sun in not recommended without HIGHLY put sunblock on) so maybe when the weather gets nicer I will get a light self tanner and give that a try. Let's be honest, anyone who wears a wig knows that wigs are very HOT..  Also, anyone who knows / has been through chemo knows that Chemo causes Monster Menopausal Hot flashes. So Wigs, Summer and Chemo don't mix. I plan to go bald as much as possible.
Before head shave               After
Oh yeah, another inconveniencing symptom I almost forgot to mention. For a few days I had this crazy itchy thing going on (needed to double up on my antihistimine to reduce it). When I say itching I don't mean, a tiny bug bite type of itching. I mean, full on full body style rash itching. Except, this itch was just on palms of my hands and feet, and inside my mouth, gums, throat, deep down in my throat itching that was almost a tickle irritation. Eating semi hard things (fried chicken) made it worse and also, the gums - flesh in the mouth are super sensitive, I got a few sores in my mouth. So, I highly recommend getting the Oncologist recommended mouth wash. It works amazingly.